Consumers and Carers Direct Experiences of Mental Health Care in Australia

What is the study about? You are being invited to participate in a study being conducted by ConNetica in partnership with the Brain & Mind Research Institute (BMRI) at The University of Sydney regarding people's experiences with mental health services. In this component of the study, we will be asking consumers, carers and family members (aged 18 to 64 years) to participate in an online survey. Before you decide to take part, it is important for you to understand what this study will involve. You will need to indicate that you have understood this information before you can continue. By clicking “Next” at the bottom of this page, you are consenting to participate in this survey.

Who is carrying out the study? The study is being conducted by Professor Ian Hickie, Executive Director of BMRI and Professor of Psychiatry, The University of Sydney; John Mendoza, Director of ConNetica, Ms Tracey Davenport, Research Affiliate, School of Medical Sciences (Physiology) and BMRI; and Dr Louise Ellis, Research Affiliate, BMRI.  

What does the study involve? This component of the study involves an online survey which is divided into two sections:

   The first asks consumers, carers and family members about their experiences with mental health services as well as some demographic information. It's basic domains are drawn from those identified by the Picker Institute Europe as critical elements of quality health care.

   The second asks consumers only, more specific questions about their experiences with mental health services. It is based on a previous survey undertaken in Australia to evaluate consumer’s direct experiences of care.

How much time will the study take? The survey will take no more than 20 minutes to complete.

Can I withdraw from the study? Being in this study is completely voluntary - you do not have to participate. If you do decide to participate, you are free to withdraw your consent and to end your participation at any time without affecting your relationship with ConNetica or The University of Sydney. You do not have to give a reason if you decide that you do not want to participate in the study any more.

Will anyone else know the results? All aspects of the study, including results, will be strictly confidential and only the researchers will have access to information on participants. A report of the study may be submitted for publication, but individual participants will not be identifiable in any way.

Will the study benefit me? We cannot guarantee that participants will receive any direct or indirect benefits from participating in this study. However, it is hoped that the results from this study will be used to inform mental health policy and practice in Australia.

Can I tell other people about the study? Yes, you can tell other people about the study.

What if I require further information about the study or my involvement in it? If you have any questions or would like more information about the study, please feel free to contact, Tracey Davenport, BMRI, tracey.davenport@sydney.edu.au, ph: 61 2 9351 0810. 

What if I have a complaint or any concerns? Any person with concerns or complaints about the conduct of a research study can contact The Manager, Human Ethics Administration, The University of Sydney on +61 2 8627 8176 (Telephone); +61 2 8627 8177 (Facsimile) or ro.humanethics@sydney.edu.au.

 





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